A Tale of Two Cemeteries / New School Talk Announcement
Last week when Peter and I were driving back from Cleveland/Meadville we decided to take back roads up to the Thruway. I had especially wanted to go through North Warren, PA to see the Warren State Hospital. It is only about an hour from Meadville and is a really amazing facility.
It is still an active psychiatric hospital so I wasn’t allowed to photograph, but I was actually more interested in the cemetery.
I have written often about the issue of names in relation to my suitcases project. Especially how the State of New York prohibits the use of full names of the patients in respect to my work and in regards to the hospital cemeteries.
Here in Pennsylvania patient’s names are on the grave stones.
If you were to drive north about 60 miles into New York State and go to the cemetery at the Gowanda Psychiatric Center, you will find an entirely different story.
While there are a few graves marked with names, the vast majority only have numbers. This is mostly due to New York State’s primitive privacy laws, which supposedly protect families from the “shame” of having a relative who was institutionalized.
There are groups throughout New York that are working very hard to memorialize patients who are buried in hospital cemeteries. There is a lovely Helen Keller quote on the memorial stone above, and this cemetery is very well maintained.
It just seems so wrong to me that New York State continues to stigmatize folks who were patients at state hospitals by basically denying anyone (including families) the knowledge that they existed. Here is a link to another post I did that gives a bit more background on the issue of names. Just don’t try to contact John B. Allen at NYS OMH. He no longer works there.
Thanks for following. I’ll be presenting the suitcases project at the New School on Thursday the 12th of September at 6:00 PM. Here is a link to the announcement, but as of today, the time listed is off. I start speaking at 6:00 and it ends at 8:00. I really hope to see some of you there. It will be interesting.
Willard Suitcases / Charles F. Grave / Ithaca
I have known for a long time now that Charles F. was buried in Ithaca.
The photo of his grave is the last image that I need for the book Ilan Stavans and I are doing for SUNY Press.
Ilan’s essay is beyond amazing, and I am really happy with the section of the book that has the two of us talking about our feelings about Charles and to the contents of his suitcase. / Searching online I was able to find the location of his grave, but I had no map of the cemetery by which to determine the exact location. This morning I went to the Ithaca Town Hall where a very nice and helpful person gave me the information that I needed.
There are two sections of the cemetery that are reserved for the burial of Jewish folks. When I saw these graves I knew I was getting close.
Charles is buried at the most Southeastern corner of the cemetery.
The fact that (by New York State law) I have to obscure the surnames of the patients is really pissing me off these days. Charles died in 1950 and I think it continues to stigmatize patients to deny who they were. I hear so regularly from family members seeking information about relatives who lived at Willard, and I feel terrible that I can’t help out. New York State law supercedes Federal HIPAA laws about what can be revealed to families and other interested parties. This can only be changed through the legislature, and I am really interested in finding a legislator in Albany to introduce a bill to bring New York State in line with Federal law (the Feds put the cap at 50 years after death, and for New York State the cap is forever). To cover myself here I put these leaves over his name but IT JUST FEELS SO WRONG.
Here’s a view from another angle. Much more pleasing that the previous one showing the buildings in the background.
Peter Carroll came along to shoot some B-Roll as I worked today. We are slowly moving ahead with the documentary on the project. It’s still very early stages, but we are hoping to put up a Kickstarter appeal sometime in the late Summer in order to be able to produce a short piece which we can then preview to funders.
Thanks for following along everyone. I am posting almost daily to the @willardsuitcases Instagram account, so if you haven’t checked it out, please do.
Travel / Willard Suitcases Documentary / St Crispin’s Day
Yesterday morning I drove out to Ithaca to begin work on the suitcases documentary that I am working on with Peter Carroll and Deborah Hoard.
After a quick lunch at the Lincoln Street Diner, Peter and I drove up to Willard to shoot some B-roll in the Cemetery.
It is a special place to visit in so many ways. When I took this photograph, the smell of mint was intense. It seemed odd that it was so healthy this late in the year.
We are in the beginning stages of figuring out how to document my work with the suitcases. The point of this early filming is to to create a short piece that will help us raise funds. We will probably run another Kickstarter campaign, which I expect will be up in the early part of next year.
It was a beautiful day on the lake. Chilly and breezy, which is to be expected in late October. I can’t emphasize enough what an amazing spot this is. The fact that 5,776 former Willard patients are buried here makes for an emotional experience.
With the help and encouragement of the wonderful Peggy Ellsworth and Craig Williams, we were given access to the Romulus Historical Society to film the interview today. It worked out really well (even though the heat is currently off in the building).
Peter is a genius in setting up lighting for interviews. This is a frame grab from the video. I am looking a bit stern in this shot, but I do smile from time to time. It was a really productive day and I was reminded of how great it is to work with Peter and Deb.
The historical society has a few suitcases that for some reason never made it into the main collection in Albany. It was nice to be able to use them in the setup.
I have driven past this winterized travel trailer on Route 96 repeatedly and finally stopped to take a few photos. I love how the little wheels are covered too!
Today is St. Crispin’s Day. I usually try to drink a load of Cognac to assist me in feeling a connection to the French and English soldiers who died at the battle of Agincourt. If this post is a bit wordy, I’ll blame it on the bottle of Hennessy that seems to be emptying at a rather steady pace. Check out the amazing Olivier in the 1944 version of Shakespeare’s Henry V.
Thanks for following. Be well.
Willard / Meadville Trip / Conneaut Lake Park
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After living in D.C. for the past 5 years, our son Peter has moved home for a bit to take some classes and do GRE prep. It is nice to have him around. Soon after he returned to Massachusetts we planned a quick trip to Meadville and Pittsburgh to catch a Pirates game.
The Willard employee reunion dish-to-pass event was happening on the Saturday that we drove out, so he and I stopped to say hi to old friends. We had time afterwards to go to the cemetery which is always a very moving experience.
The sign at the Jewish part of the cemetery is looking a bit run down and could use some help.
The little stone marker is still there.
Here is one of the numbered graves in that part of the cemetery. It makes me so sad that #43 has no name. The state of New York could remedy this if they cared enough to publish the names of the patients who are buried here.
Before Peter and I continued on to Meadville, we stopped by the Romulus Historical Society building to see the recent exhibit updates. It was nice to see Craig Williams and Debbie Nichols who had been a nursing student and then a nurse at Willard.
Here is Debbie sitting next to her actual uniform. It is a great little museum and well worth a visit.
I’ve been stopping at the Angola Rest Area on the New York Thruway for as long as I can remember. It is so nice to walk over the highway to get to the main building.
The first stop was a visit to Eddie’s Footlongs on the lake road outside of Meadville. I had 2 with the works.
Next stop Hank’s Frozen Custard. I had 2 here as well. Chocolate.
On Sunday morning we got word that the Pirate’s game was cancelled due to rain, so we checked out of the motel and drove to Allegheny College to see the tree we planted in honor of my Dad.
My sister Karen chose a lovely Winter King, and it is thriving.
It was a rainy Sunday morning and after breakfast at the Meadville Market House Grill, we drove out for a last Hank’s and then around Conneaut Lake. The amusement park was not surprisingly deserted, but it was strange that country music was playing through the loudspeakers.
There was no one there to yell at us to stay off the rides, so we wandered and took some pictures.
Ugh, clowns.
On the left above is the Blue Streak roller coaster. I was never keen on riding it, but once Judy Jacoby who was my girlfriend for a short time convinced me to go on it. It was fine.
It is difficult to know for sure, but I think the park is still open. But it was a bit eerie to walk around with the music blaring and nobody else there.
The coaster car is pretty classic.
A Century Flyer made in Dayton, Ohio.
Here’s the entry into the first tunnel.
The master controls. ↑
Peter and I actually rode the Devil’s Den many years ago. The “Infamous Gum Wall!! is just that. People started sticking chewing gum on the wall when the ride slowed down and it became….well infamous.
Cristine and I are off to Nepal on Friday. I hope to post regularly from Kathmandu.
Cheers everyone and thanks for following.
Ovid / Willard Cemetery / NAMI Waco
I had a great meeting at the Edith B. Ford Library in Ovid, NY to talk about the possibility of working on an oral history project with former Willard employees. Peter Carroll and I drove up from Ithaca this morning and met with Shannon O’Connor and Monica Kelly who both are doing amazing things at the library. Monica is building an archive of Willard materials, and if anyone who reads this has any records or photographs related to the asylum, you should really contact her.
Afterwards Pete and I drove to the Holy Cross Cemetery on Gilbert Road.
Recently, a local group raised funds and erected a monument to Willard folks who died at the institution and are buried at Holy Cross. I am not exactly sure what the problem is, but some people have objected to it, and so the monument has been covered up since just after it was unveiled. The issue of naming former patients and staff continues to come up, and is still a problem on many levels. I’ll be eager to find out what really happened here.
After leaving Holy Cross, we drove over to the Willard Cemetery which is down the road and across the street from the asylum. This is such an indescribably moving place for me. It was a really beautiful late Winter day and the idea that 5,776 former patients are buried here in unmarked graves always touches me deeply.
The site is very well looked after, and the area around some of the few remaining numbered cast iron markers has recently been cleared of brush.
And it is always nice to see the monument to Lawrence Mocha, who as a patient, dug by hand over 1500 of the graves.
I found out today that I have been invited to Waco, Texas to be the keynote speaker at the annual NAMI Waco dinner and gala. The event is the evening of Thursday, 18th May and if you live anywhere nearby, I would love to meet you.
Dix Hospital Cemetery / Willard Suitcases
The visit to WUNC went really well. Frank Stasio was a great interviewer and it was fun to chat with him and Rose Hoban, whose interest in the suitcases brought me to Raleigh for the Lives on the Hill event. Here is a link to the broadcast.
I am staying with my friends Eric and Gail Vaughn and yesterday they drove me over the Dix grounds so I could get my bearings. I saw this marker for the cemetery and we stopped to walk around.
I was actually shocked to see that the grave markers used names instead of numbers as New York State does. And it made me both sad and angry that New York still refuses to allow former patients to be identified.
It would seem such an easy thing to change, but New York State OMH has no interest in doing so.
Please go to Lin Stuhler’s site and read her goodbye post. She has said it much better than I ever could.
Tonight is the reception at The Mahler Fine Art gallery in Raleigh and tomorrow is the big public event. If you are in the area please come by. Thanks for following.
Willard Suitcases / Names
I just got word that the governor of New York State has signed Senate Bill S840A. Here is the summary of the bill; “(Senate Bill S840A ) relates to patients interred at state mental health hospital cemeteries; directs the release of the name, birthdate and date of death of certain patients 50 years after the date of death”. I am not totally clear about what “certain patients” means, and to whom this information may be released, but this is certainly good news. Here is a link to two earlier posts I did about the cemetery and the whole issue of names. Click on Coleen Spellecy’s and Lin Stuhler’s links to read about the two people who did the most to get this bill through the legislature. And thanks to Joe Robach for being persistent in getting the bill passed and signed into law.
The issue of not being allowed to name the owners of the suitcases has always bothered me. I have been expressly told by both the New York State Museum and the New York Office of Mental Health that due to state law, I am forbidden to use the surnames of the patients when I publish the photographs, even though some of those names have already been mentioned in local newspapers and in other sources. I feel that not using surnames continues to dehumanize the folks who were already stigmatized just by being patients at Willard. Due to this new law, it might be possible, in some instances, to begin using full names. All in all, this is a pretty exciting development.
Thanks for following and check out the suitcases site to see the latest.
Willard Suitcases / Ovid Talk / Willard Cemetery / Interesting Information
On Thursday, I made the trip from Western Massachusetts to Ovid, NY for my talk about the suitcases. I arrived late in the afternoon and the light was nice on the front of this lovely early 1960s building.
It is so great to see a library from this era that hasn’t been messed up by continuous “updating”.
The crowd of about 50 people who attended the event was fantastic. At the beginning of my talk I asked how many in the audience had been employees at Willard, and up went at least 10 hands. I always learn so much by being able to talk to folks who were intimately connected with the place. In fact, two very important facts came out during the question and answer. The first was that while the patients were at Willard, their suitcases and possessions were kept in storage on the same floor as their rooms. And they absolutely had access to their things. I get asked about this regularly; I think most people who see the project assume that once they came to the institution they were stripped of their belongings, which I now know not to be the case.
The other bit of information that I had never understood has to do with why the suitcases were kept by the institution. When a patient died, the State of New York contacted the families and were given two options. Send money to cover shipping costs or come to Willard and pick up the suitcases. We now know that neither of these things happened to approximately 400 deceased patients, which is why the collection exists today. Amazing. Thanks so much to the wonderful Peggy Ellsworth for clearing this up.
Before the Friday noon brown bag lunch at the library, I had the chance to go to the cemetery and walk around for a bit. It is always something I do when in the area, and connects me to the place in a very real way.
Recently I have been in contact with a nice gentleman who expressed an interest in Frank C. He was concerned that as a veteran, Frank was not accorded the proper respect in his burial. This brought up the subject of the section of the cemetery that contains the headstones of veterans who were patients at Willard. As you can see by the flags, there is someone making sure that this section is well tended. What is most interesting is that this is the only part of the cemetery where the patients are named, and headstones placed over the graves.
I hope to be updating the willardsuitcases.com site quite a bit this week, so check it out if you get the chance. Thanks for following.
Sunday Evening
I made this corn chowder recipe tonight. Perfect for a cold Sunday. I always buy extra ears of sweet corn during the summer and freeze what we don’t eat for days like this. Very nice; give it a try sometime.
One of the great things about the suitcases project is hearing from people who find other work that is related to institutionalization. Charlie Seton sent me this link today. What an interesting project. Thanks Charlie. And my great buddy Hank who has been following the suitcases from the beginning sent this link about Letchworth Village in Rockland County. It is interesting to me that surnames are used on the commemorative plaque.
I know some of you know a lot about plants. I started seeing these guys in the early Autumn. I don’t think they are plants that lost their leaves; I am quite sure that this is the whole deal.
And I have discovered some new trails above the house. Before the snow last week I saw a few of these evergreen-like plants that I have never seen before. If any of you can help identify them, I would love to know.
Sorry the top is out of focus. I only had my phone with me and as this little guy was only a few inches long, there wasn’t much depth of field.
Wishing you all a great week, my dear online friends.
Jon Crispin's Notebook 
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