A Tale of Two Cemeteries / New School Talk Announcement
Last week when Peter and I were driving back from Cleveland/Meadville we decided to take back roads up to the Thruway. I had especially wanted to go through North Warren, PA to see the Warren State Hospital. It is only about an hour from Meadville and is a really amazing facility.
It is still an active psychiatric hospital so I wasn’t allowed to photograph, but I was actually more interested in the cemetery.
I have written often about the issue of names in relation to my suitcases project. Especially how the State of New York prohibits the use of full names of the patients in respect to my work and in regards to the hospital cemeteries.
Here in Pennsylvania patient’s names are on the grave stones.
If you were to drive north about 60 miles into New York State and go to the cemetery at the Gowanda Psychiatric Center, you will find an entirely different story.
While there are a few graves marked with names, the vast majority only have numbers. This is mostly due to New York State’s primitive privacy laws, which supposedly protect families from the “shame” of having a relative who was institutionalized.
There are groups throughout New York that are working very hard to memorialize patients who are buried in hospital cemeteries. There is a lovely Helen Keller quote on the memorial stone above, and this cemetery is very well maintained.
It just seems so wrong to me that New York State continues to stigmatize folks who were patients at state hospitals by basically denying anyone (including families) the knowledge that they existed. Here is a link to another post I did that gives a bit more background on the issue of names. Just don’t try to contact John B. Allen at NYS OMH. He no longer works there.
Thanks for following. I’ll be presenting the suitcases project at the New School on Thursday the 12th of September at 6:00 PM. Here is a link to the announcement, but as of today, the time listed is off. I start speaking at 6:00 and it ends at 8:00. I really hope to see some of you there. It will be interesting.
Willard Suitcases / Charles F. Grave / Ithaca
I have known for a long time now that Charles F. was buried in Ithaca.
The photo of his grave is the last image that I need for the book Ilan Stavans and I are doing for SUNY Press.
Ilan’s essay is beyond amazing, and I am really happy with the section of the book that has the two of us talking about our feelings about Charles and to the contents of his suitcase. / Searching online I was able to find the location of his grave, but I had no map of the cemetery by which to determine the exact location. This morning I went to the Ithaca Town Hall where a very nice and helpful person gave me the information that I needed.
There are two sections of the cemetery that are reserved for the burial of Jewish folks. When I saw these graves I knew I was getting close.
Charles is buried at the most Southeastern corner of the cemetery.
The fact that (by New York State law) I have to obscure the surnames of the patients is really pissing me off these days. Charles died in 1950 and I think it continues to stigmatize patients to deny who they were. I hear so regularly from family members seeking information about relatives who lived at Willard, and I feel terrible that I can’t help out. New York State law supercedes Federal HIPAA laws about what can be revealed to families and other interested parties. This can only be changed through the legislature, and I am really interested in finding a legislator in Albany to introduce a bill to bring New York State in line with Federal law (the Feds put the cap at 50 years after death, and for New York State the cap is forever). To cover myself here I put these leaves over his name but IT JUST FEELS SO WRONG.
Here’s a view from another angle. Much more pleasing that the previous one showing the buildings in the background.
Peter Carroll came along to shoot some B-Roll as I worked today. We are slowly moving ahead with the documentary on the project. It’s still very early stages, but we are hoping to put up a Kickstarter appeal sometime in the late Summer in order to be able to produce a short piece which we can then preview to funders.
Thanks for following along everyone. I am posting almost daily to the @willardsuitcases Instagram account, so if you haven’t checked it out, please do.
Willard / Meadville Trip / Conneaut Lake Park
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After living in D.C. for the past 5 years, our son Peter has moved home for a bit to take some classes and do GRE prep. It is nice to have him around. Soon after he returned to Massachusetts we planned a quick trip to Meadville and Pittsburgh to catch a Pirates game.
The Willard employee reunion dish-to-pass event was happening on the Saturday that we drove out, so he and I stopped to say hi to old friends. We had time afterwards to go to the cemetery which is always a very moving experience.
The sign at the Jewish part of the cemetery is looking a bit run down and could use some help.
The little stone marker is still there.
Here is one of the numbered graves in that part of the cemetery. It makes me so sad that #43 has no name. The state of New York could remedy this if they cared enough to publish the names of the patients who are buried here.
Before Peter and I continued on to Meadville, we stopped by the Romulus Historical Society building to see the recent exhibit updates. It was nice to see Craig Williams and Debbie Nichols who had been a nursing student and then a nurse at Willard.
Here is Debbie sitting next to her actual uniform. It is a great little museum and well worth a visit.
I’ve been stopping at the Angola Rest Area on the New York Thruway for as long as I can remember. It is so nice to walk over the highway to get to the main building.
The first stop was a visit to Eddie’s Footlongs on the lake road outside of Meadville. I had 2 with the works.
Next stop Hank’s Frozen Custard. I had 2 here as well. Chocolate.
On Sunday morning we got word that the Pirate’s game was cancelled due to rain, so we checked out of the motel and drove to Allegheny College to see the tree we planted in honor of my Dad.
My sister Karen chose a lovely Winter King, and it is thriving.
It was a rainy Sunday morning and after breakfast at the Meadville Market House Grill, we drove out for a last Hank’s and then around Conneaut Lake. The amusement park was not surprisingly deserted, but it was strange that country music was playing through the loudspeakers.
There was no one there to yell at us to stay off the rides, so we wandered and took some pictures.
Ugh, clowns.
On the left above is the Blue Streak roller coaster. I was never keen on riding it, but once Judy Jacoby who was my girlfriend for a short time convinced me to go on it. It was fine.
It is difficult to know for sure, but I think the park is still open. But it was a bit eerie to walk around with the music blaring and nobody else there.
The coaster car is pretty classic.
A Century Flyer made in Dayton, Ohio.
Here’s the entry into the first tunnel.
The master controls. ↑
Peter and I actually rode the Devil’s Den many years ago. The “Infamous Gum Wall!! is just that. People started sticking chewing gum on the wall when the ride slowed down and it became….well infamous.
Cristine and I are off to Nepal on Friday. I hope to post regularly from Kathmandu.
Cheers everyone and thanks for following.
Willard Suitcases / Madeline C
I have posted about Madeline before and her possessions represent a very interesting life before she came to Willard.
Throughout this project I have consciously tried to avoid obvious links between the objects in the collection and any sort of connection to being institutionalized, but I found it interesting that this was the only recording among Madeline’s things.
She came to Willard with a fairly complete record of her life in New York City, including her time studying at Columbia University and Hunter College.
She seemed to be interested in philosophy. There were quite a few references to Bergson in her papers.
Her handwriting was really lovely.
Her diaries were especially complete.
I searched online for this poem thinking that she might have copied it as an exercise in writing in English (her first language was French), but nothing turned up.
In any event, it is an incredible piece of writing.
It is especially interesting how well her life was documented in photographs, and that most of the images also had their original negatives. Looking at the dates in her diaries, many of these were taken in the 1920s.
The fox stole around her neck in the picture on the right is something that one doesn’t see anymore.
I have stayed in the Prince George Hotel on W. 27th Street twice in my life. Once in high school with my friends Jay, Jeff, and Dennis. That was an interesting trip! And once sometime in the 80s shortly before it became an SRO. Quite interesting as well.
You can check out the photos of Madeline’s cases at the Willard Suitcases site. Click on “The Cases”, scroll to the bottom and click on Madeline C. Be sure to click “view all” as there are many more than 25 images. The site was hacked into recently and everything seems to be sorted now. Huge thanks to Steve Fox at Born Digital Web Design for getting it fixed. He’s the man if you need a photo site set up.
Willard Suitcases / Margaret D / 14 April 2015
I am working my way through Margaret’s cases and her collection never ceases to amaze me. You can see the latest here. (Don’t forget to click “view all” as there are now close to 500 images in her collection.)
Margaret brought quite a number of sewing items with her when she came to Willard, including the above stencil with Masonic designs.
I am currently editing a shoot that was mostly delicate items like the above undergarment, as well as some of her nursing uniforms. I’ll have a post up sometime in the next few days with those photos.
I would also mention that Margaret was one of the 10 folks originally featured in the State Museum’s 2004 exhibit. The made-up surname they used for her was Dunleavy and if you do a search for her name and Willard you should come across very detailed information about her life. The “Lives They Left Behind” book has a surprisingly complete history of her life before Willard.
I am often asked about how much I know about the patient’s lives before and during their time at the institution. It is way too complex for me to elaborate here, but needless to say, I have very strong feelings about my need to separate the patient’s clinical lives from what we can learn about them through their possessions. I tend to talk about it when I present the project to various groups, so maybe one day we will get the chance to meet up and chat. Thanks for following.
Willard Suitcases / Chapin House / NAMI Waco
I took this photo in the early 1980s at the very beginning of my connection with Willard. It is still one of my favorites from the “Silent Voices” project.
Here are a few shots from my recent uploads to the suitcases site.
I’m not exactly sure what the white fabric object is in Kenneth Q’s case, but it is interesting. The orange toothbursh is kind of nice.
Elizabeth C’s dress is so beautiful.
The cotton fabric is soft and wonderful.
There are 3 different places on the above photograph where I had to obscure Amelia’s surname, and it still makes me sad every time I have to do so. The Office of Mental Health pr guy told me a few years ago that it was necessary due to the stigma of mental illness. It is precisely that attitude that prolongs that stigma; the Willard patients deserve to be recognized as being more than just patients at a New York State asylum.
On Wednesday, I fly to Texas to present the suitcases project at a dinner sponsored by NAMI Waco. Here is a link to the event. If you are in the area, it would be great to see you and make a connection.
Thanks for following.
Willard Patient Dress / Part 1
There are quite a few items in the Willard collection at the New York State Museum that are not part of my suitcases documentation. These “institutional” pieces were too numerous to photograph, but this embroidered dress just had to be documented. The work was done by a patient who is not identified, but I am in touch with some folks who worked at Willard who might know who created this.
This will be a photo heavy post with less text than in my usual posts, but the details in the dress are amazing and I wanted to share as many as I could.
It wasn’t just the amazing designs; the precision of the embroidery knocked us out.
There were a good number of cats on the dress.
This one seems to be hovering over a plant.
Not sure what is going oh above, but the orange is such a beautiful color.
This looks to me like a cat but what is it doing? Any thoughts?
I love how this person’s hair is rendered.
The orange flower in her hair is lovely.
These little flowers are so delicate.
The watch and ring on this figure are such a nice touch.
Thanks so much to Peg Ross for helping me set the dress up in order to photograph it. I am terrible at stuff like this, and as usual, she really made it happen. And if I remember correctly, Connie Houde from the museum was also there to assist.
I hope to post the back of the dress (I want to keep calling it a shift; is that correct?) sometime soon. I leave Atlanta later today but will head out to the Botanical Garden before my flight. Thanks for following.
Ovid / Willard Cemetery / NAMI Waco
I had a great meeting at the Edith B. Ford Library in Ovid, NY to talk about the possibility of working on an oral history project with former Willard employees. Peter Carroll and I drove up from Ithaca this morning and met with Shannon O’Connor and Monica Kelly who both are doing amazing things at the library. Monica is building an archive of Willard materials, and if anyone who reads this has any records or photographs related to the asylum, you should really contact her.
Afterwards Pete and I drove to the Holy Cross Cemetery on Gilbert Road.
Recently, a local group raised funds and erected a monument to Willard folks who died at the institution and are buried at Holy Cross. I am not exactly sure what the problem is, but some people have objected to it, and so the monument has been covered up since just after it was unveiled. The issue of naming former patients and staff continues to come up, and is still a problem on many levels. I’ll be eager to find out what really happened here.
After leaving Holy Cross, we drove over to the Willard Cemetery which is down the road and across the street from the asylum. This is such an indescribably moving place for me. It was a really beautiful late Winter day and the idea that 5,776 former patients are buried here in unmarked graves always touches me deeply.
The site is very well looked after, and the area around some of the few remaining numbered cast iron markers has recently been cleared of brush.
And it is always nice to see the monument to Lawrence Mocha, who as a patient, dug by hand over 1500 of the graves.
I found out today that I have been invited to Waco, Texas to be the keynote speaker at the annual NAMI Waco dinner and gala. The event is the evening of Thursday, 18th May and if you live anywhere nearby, I would love to meet you.
Willard Suitcases / Names
I am especially taken by the labels that we find in the suitcases. These small bits of paper and string give us quite a bit of information about the patient as they were brought to Willard. In this case, W (we only have an initial) S (not allowed to use her surname) came to the institution on 16 November 1938. This is a rare case where the label is ripped, but even so, I have had to obscure part of her name.
I am aware that there is an active debate about this, but I come down firmly on the side that would have me able to include the patient’s full names with their possessions. The reason I am forbidden from naming patients has to do with specific New York State law about the privacy of people who were wards of the state. This law supersedes even the Federal HIIPA regulations, which state that 50 years after death, records are available to the public. In fact, many other states use full names in talking about former patients at asylums and psychiatric centers. I won’t go into all the reasons why I feel it is respectful to name the suitcase owners, as I am not so good at putting this kind of argument in writing. But someone contacted me last week who is really good at it.
Here is a link to a post on her site. I am grateful for all the nice things she said about me, but I am especially pleased that she was able to put into words something that I think about often; which is how to show respect to people who at one time in their lives were patients at Willard. So Nelly, thank you so much for your openness about your own situation and the clarity with which you expressed your feelings. I really appreciate it.
Jon Crispin's Notebook 
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